Buckets and Birdies

Buckets and Birdies
Co-Pilots for Life: Greta and Mary Katharine

Wednesday, August 7, 2013

Prefontaine Greta.



Big week for Greta---her feet grew and she got taller.  She also got her toy room carpet cleaned.  Pretty exciting.  We had a follow up visit to a new neurologist in Fort Wayne, who turned out to be a wonderful lady.  Dr. Khan was very nice and extremely detailed.  We had to bump up Greta's medicine, as she has been experiencing some "break through" epileptic activity--normal after a growth spurt.  She ordered a basic blood test to make sure everything is okay, as well as another sleep deprived EEG, to establish her own baseline for Greta's brain activity.  She is optimistic that the increase of medicine with get Gertie back on track.  Nothing to really worry about.  I am still a sleep nazi---I also watch her like a hawk.  Her symptoms are extremely subtle.  Thankfully, we have the best babysitter in the world, Kirsten, who loves Greta as much as we do.  She is great about reporting any abnormal sleep behaviors that would give us reason to worry.

Greta is continuing her speech therapy and is doing great!  She is talking up a storm, much of the time in Ewok or Unicorn, but regardless, she is talking!  I do believe her time at Kirsten's has helped Greta to instigate more conversations (with herself) and others.

We are looking forward to this weekend.  Greta will be attending her first Princess birthday party.  I would like to dress her up as Wonder Woman, but there is a strict Princess dress code that is enforced.

She was very excited to have a visit from Pepe this week---very busy.  She helped him mow the lawn, move the picnic table, play dollies, and eat french fries.  She is excited to see both Mimi and Pepe at Beau's birthday party next week.  

We are looking forward to a trip back to BH to see Uncle Joey and Auntie Kelly in two weeks.  I've been itching to get Greta to the Detroit Zoo to see the elephants, polar bears, and reptile house.

I'd like to take this time to make a shout out/air high five to all of the lovely folks in our lives who continue to support Greta with prayers and good spirits.  She is doing great and she is clearly nothing short of a miracle----like I said once before, she is a unicorn.